Considerations for patient and public involvement and engagement in health research.
Abstract
Patient and public involvement and engagement (PPIE) can provide valuable insights into the experiences of those living with and affected by a disease or health condition. Inclusive collaboration between patients, the public and researchers can lead to productive relationships, ensuring that health research addresses patient needs. Guidelines are available to support effective PPIE; however, evaluation of the impact of PPIE strategies in health research is limited. In this Review, we evaluate the impact of PPIE in the ‘Therapies for Long COVID in non-hospitalised individuals’ (TLC) Study, using a combination of group discussions and interviews with patient partners and researchers. We identify areas of good practice and reflect on areas for improvement. Using these insights and the results of a survey, we synthesize two checklists of considerations for PPIE, and we propose that research teams use these checklists to optimize the impact of PPIE for both patients and researchers in future studies.
Author
Aiyegbusi, Olalekan Lee
McMullan, Christel
Hughes, Sarah E
Turner, Grace M
Subramanian, Anuradhaa
Hotham, Richard
Davies, Elin Haf
Frost, Chris
Alder, Yvonne
Agyen, Lisa
Buckland, Lewis
Camaradou, Jennifer
Chong, Amy
Jeyes, Felicity
Kumar, Sumita
Matthews, Karen L
Moore, Patricia
Ormerod, Jane
Price, Gary
Saint-Cricq, Michael
Stanton, David
Walker, Anita
Haroon, Shamil
Denniston, Alastair K
Calvert, Melanie J
McMullan, Christel
Hughes, Sarah E
Turner, Grace M
Subramanian, Anuradhaa
Hotham, Richard
Davies, Elin Haf
Frost, Chris
Alder, Yvonne
Agyen, Lisa
Buckland, Lewis
Camaradou, Jennifer
Chong, Amy
Jeyes, Felicity
Kumar, Sumita
Matthews, Karen L
Moore, Patricia
Ormerod, Jane
Price, Gary
Saint-Cricq, Michael
Stanton, David
Walker, Anita
Haroon, Shamil
Denniston, Alastair K
Calvert, Melanie J
Citations
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Date
2023-07-20
Type
Article
Subject
Public health. Health statistics. Occupational health. Health education
Collections
Citation
Aiyegbusi OL, McMullan C, Hughes SE, Turner GM, Subramanian A, Hotham R, Davies EH, Frost C, Alder Y, Agyen L, Buckland L, Camaradou J, Chong A, Jeyes F, Kumar S, Matthews KL, Moore P, Ormerod J, Price G, Saint-Cricq M, Stanton D, Walker A, Haroon S, Denniston AK, Calvert MJ; TLC Study Group. Considerations for patient and public involvement and engagement in health research. Nat Med. 2023 Jul 20. doi: 10.1038/s41591-023-02445-x. Epub ahead of print. PMID: 37474660.
Journal / Source Title
Nature Medicine
DOI
10.1038/s41591-023-02445-x
PMID
37474660
Publisher
Nature Research
Publisher’s URL
https://www.nature.com/articles/s41591-023-02445-x