A systematic review and narrative synthesis of inclusive health and social care research with people with intellectual disabilities: How are co-researchers involved and what are their experiences?
Abstract
Background
Using inclusive research methods with people with intellectual disabilities is increasingly common. A recent consensus statement identified key elements when conducting and reporting inclusive research with people with intellectual disabilities. This review identifies the range of health and social care research topics using inclusive research methodologies, systematically appraises the involvement of researchers with intellectual disabilities, and identifies facilitators and barriers to inclusive research. Researchers' experiences of engaging with inclusive research are synthesised.
Method
Seventeen empirical studies focused upon inclusive health and social care research were identified. The associated inclusive research methodologies employed, and the stages in which researchers with intellectual disabilities were involved, along with the experiences of researchers with and without intellectual disabilities were synthesised.
Results
Papers focused on a broad range of health and social care topics and largely employed qualitative or mixed-methods designs. Researchers with intellectual disabilities were frequently involved with data collection, analysis and dissemination. Facilitators of inclusive research comprised sharing power, team working, having sufficient resources and making research methodologies accessible.
Conclusions
Researchers with intellectual disabilities are involved in a wide range of methodologies and research tasks. How the added value of inclusive research is measured and its impact on outcomes, require consideration.
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Date
2023-04-01
Type
Article
Subject
Mental health
Collections
Citation
Hewitt, O., Langdon, P. E., Tapp, K., & Larkin, M. (2023). A systematic review and narrative synthesis of inclusive health and social care research with people with intellectual disabilities: How are co-researchers involved and what are their experiences? Journal of Applied Research in Intellectual Disabilities, 36(4), 681–701. https://doi.org/10.1111/jar.13100
Journal / Source Title
Journal of Applied Research in Intellectual Disabilities
DOI
10.1111/jar.13100
PMID
37002721
Publisher
Wiley
Publisher’s URL
https://onlinelibrary.wiley.com/doi/10.1111/jar.13100