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Living with mental health issues: citizen science project on self-management strategies
Slade, Mike Todowede, Olamide Boyd, Doreen Ewart, Colleen Hara, Akemi Higton, Fred Moran, Stuart Repper, Julie Robotham, Dan Slade, Emily
Slade, Mike
Todowede, Olamide
Boyd, Doreen
Ewart, Colleen
Hara, Akemi
Higton, Fred
Moran, Stuart
Repper, Julie
Robotham, Dan
Slade, Emily
Abstract
People living with mental health issues use a range of self-management strategies. Most strategy recommendations have been developed by clinicians and researchers, so they may not reflect the full range of approaches used in practice. A citizen mental health science methodology can address this bias in strategy identification. We co-created a list of 77 pre-defined self-management strategies, and 1116 public contributors (n = 468 mental health service users, n = 497 lived experience not using services, n = 151 no lived experience) living in the United Kingdom completed an online survey identifying their use of each strategy, and identifying extra strategies. A wide range of pre-defined strategies were used by contributors, with differences in usage patterns identified between the three groups. 401 distinct extra strategies were identified. The active use of avoidance as a self-management strategy was more common than anticipated, including avoiding alcohol, social media, thinking about problems, other people, and mental health services.
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2025
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Slade 2025 1-9.pdf
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Slade, M., Todowede, O., Boyd, D., Ewart, C., Hara, A., Higton, F., Moran, S., Repper, J., Robotham, D., Slade, E., et al. (2025). Living with mental health issues: citizen science project on self-management strategies. npj Mental Health Research, 4 (1), pp.50.
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© The Author(s) 2025