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International lymphoedema framework chronic oedema/lymphoedema outcome measures project: American lymphedema framework project stakeholders report

Moffatt, Christine J
Abstract
Introduction: Research demonstrates the negative impact of lymphoedema on all aspects of life. Ongoing issues in building evidence-based treatment consensus guidelines create therapy challenges. Aim(s): To explore healthcare professional characteristics in the US, perceptions of lymphoedema outcome priorities and outcome measurements. Method(s): A survey was launched by the International Lymphoedema Framework (ILF) in 2018. Data were analysed addressing stakeholder characteristics and perspectives from healthcare professionals, patients, educators and industry. Result(s): Data from 341 USA healthcare professionals were analysed. Most respondents were occupational (42%) and physical (39%) therapists. Si xty-five percent of respondents reported measuring treatment outcomes. Forty-si x percent of respondents reported not knowing if international or regional guidelines existed. Top treatment outcomes measures reported were arm circumference (84%) and mobility (65%). Stable limb volume (54%) and improved quality of life (54%) were the top success measures. Conclusion(s): The American Lymphedema Framework Project recommends increasing awareness of national and international standards for lymphoedema care/outcomes. Copyright © 2021, OmniaMed Communications Ltd. All rights reserved.
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Date
2021
Type
Article
Subject
Chronic disease, Lymphoedema, Oedema, Outcome assessment, healthcare
Citation
Armer, J.M., Anderson, E.A., Armer, N.C., Smith, K.M. and Moff, C. (2021) 'International lymphoedema framework chronic oedema/lymphoedema outcome measures project: American lymphedema framework project stakeholders report', Journal of Lymphoedema, 16(1), pp. 20-23.
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OmniaMed Communications Ltd
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