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Exploring participation after paediatric acquired brain injury
Abstract
This study aimed to explore the levels of participation in a UK sample of children and young people (CYP) with an acquired brain injury (ABI) at home, school and in the community through a cross-sectional study. The Child and Family Follow-Up Survey was distributed to parents/carers of 134 CYP with ABI (CYP-ABI) who received neuro-rehabilitation from 2014 to 2016. Access and recruitment were problematic resulting in a low response rate (4%). Widespread restrictions in participation were reported by four of the five respondents with community-structured events/activities and educational activities being the most restricted. Factors impacting on participation were cognitive-based and movement skills, family stress and lack of support/encouragement in the community. Study results provide information pertaining to the feasibility of undertaking research with this population while also highlighting the restrictions to participation experienced by CYP-ABI more than two years after injury.
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Date
2021
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Article
Subject
Adolescent, Brain injuries, Child, Family
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Citation
Keetley, R., Westwater-Wood, S. and Manning, J.C. (2021) 'Exploring participation after paediatric acquired brain injury', Journal of child health care : for professionals working with children in the hospital and community, 25(1), pp. 81-92. doi: https://dx.doi.org/10.1177/1367493520905673.
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Sage
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for peer review
Adobe PDF, 312.52 KB