Loading...
A systematic review exploring perceptions of Tourette syndrome and tic disorders using the common-sense model of illness representations
Petter, Charlotte Khan, Kareem Babbage, Camilla Davies, Bethan
Petter, Charlotte
Khan, Kareem
Babbage, Camilla
Davies, Bethan
Abstract
OBJECTIVE: Tic disorders (TDs) are neurodevelopmental conditions characterised by tics and typically appear during childhood. The Common Sense Model of Self-Regulation (CSM) provides a useful theoretical framework for understanding health beliefs in people with TDs - and parents' beliefs given 'shared' illness experiences between child and parent. Exploring health beliefs in adults can also provide insight as to how TD-related beliefs may evolve over time. This systematic review aimed to use the CSM to synthesise findings from published studies exploring illness perceptions in people with TDs and parents. METHODS: Six databases were searched for studies reporting findings assessing perceptions and beliefs of TDs that aligned with ≥1 CSM illness representation dimension. Forty-four studies were eligible and narratively synthesised. RESULTS: The evidence particularly highlights the negative consequences of TDs upon employment opportunities, schooling and education, social lives and relationships - with experiences of stigma and discrimination weaving throughout these consequences. Findings from several studies reflecting emotional responses report feelings of self-consciousness, abnormality, and anxiety arising from TDs. CONCLUSION: Findings have identified potential implications for research and practice, including identifying TD-related knowledge and beliefs that could be addressed through psychoeducation, and physiological and psychological outcomes which could be addressed through appropriate interventions. PROTOCOL REGISTRATION: PROSPERO CRD42023446800.
MIDER Authors
Citations
Altmetric:
Date
2025
Type
Article
Subject
Collections
Citation
Petter, C., Khan, K., Babbage, C. & Davies, B. (2025). A systematic review exploring perceptions of Tourette syndrome and tic disorders using the common-sense model of illness representations. Psychology and Health, DOI: 0.1080/08870446.2025.2502515.
Journal / Source Title
DOI
PMID
Publisher
Taylor and Francis
Publisher’s URL
Publisher’s statement
© 2025 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons. org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. The terms on which this article has been published allow the posting of the Accepted Manuscript in a repository by the author(s) or with their consent.
Files
Loading...
Petter 2025 1-35.pdf
Adobe PDF, 3.88 MB