Mesothelioma palliative care needs: supporting patients and families with new research-based resources
Abstract
Background: Mesothelioma is a rare cancer without cure. Clinical guidelines recommend the timely provision of palliative/supportive care; however, a new study identified barriers to achieving this ambition.
Objective: The study aimed to explore palliative care needs and the role of Mesothelioma Clinical Nurse Specialists (MCNSs); and to develop resources to address study findings.
Methods: The mixed-methods study included a literature review, focus groups, interviews and surveys.
Results: The study highlighted the important role of the MCNSs in palliative care and the need to: address disjointed care; improve support for families; and explain the benefits of palliative care for patients/families. A co-production approach developed an animation for patients/families to demystify palliative care and explain the benefits of early-stage engagement; and an infographic targeted at community and primary care professionals. Recommendations for community nursing practice are described.
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Mesothelioma, Community nursing, Palliative care, Patients and families
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Citation
Hargreaves, S., Gardiner, C., Tod, A., & Darlison, L. (2023). Mesothelioma palliative care needs: supporting patients and families with new research-based resources. British journal of community nursing, 28(5), 248–252. https://doi.org/10.12968/bjcn.2023.28.5.248