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Aphasia partnership training: What outcomes do people with aphasia, family members and speech and language therapists expect?
Palmer, Rebecca Hilari, Katerina Magdalani, Carla Coster, Joanne Beeke, Suzanne Gibbs, Emma Witts, Helen Sudworth, Kate Jagoe, Caroline Cruice, Madeline
Palmer, Rebecca
Hilari, Katerina
Magdalani, Carla
Coster, Joanne
Beeke, Suzanne
Gibbs, Emma
Witts, Helen
Sudworth, Kate
Jagoe, Caroline
Cruice, Madeline
Abstract
Abstract Introduction: Life with aphasia affects the whole family with shorter, less frequent conversations, frustration, reduced social networks, isolation and tension in relationships. Evidence suggests communication partner training (CPT) benefits families. However, expected improvements are poorly articulated. The Aphasia Partnership Training (APT) project aimed to identify target outcomes of a new family dyad CPT programme through persons with aphasia (PWA), family member and speech and language therapist (SLT) consensus. Method: Consensus on desired outcomes was achieved through nominal groups
with 20 people with mild to severe aphasia across five groups and 10 family members of people with mild to severe aphasia across three groups, each facilitated by —two to three SLTs. Twelve CPT researchers 16 clinical SLTs with experience
of CPT participated in a three-round eDelphi to gain consensus on outcomes they perceived most likely to change. Results were triangulated using a convergence coding scheme to demonstrate agreement, partial agreement, dissonance or silence amongst the three stakeholder groups. Results: All stakeholders agreed ‘conversation’ and ‘thoughts and feelings’ were very important outcomes of APT/very likely to change (agreement). Change in ‘relationships’ was very important to family members, important to PWA and considered very likely to change by SLTs (partial agreement). Change in ‘language’ (specifically talking) was very important to PWA, but not important to family members, and SLTs were uncertain about language improvement from
APT (dissonance). Each outcome construct is illustrated by specific examples generated and agreed by all stakeholder groups. Conclusions: We should aim to achieve improvements in conversation and thoughts and feelings with CPT, consider the impact on relationships and investigate the potential for language improvement (talking) as an outcome of APT. Outcome measures can be selected based on good coverage of examples generated within these constructs, ensuring they are meaningful to PWA and family members.
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Date
Type
Article
Subject
Mental health, Neurology
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Citation
Int J Lang Commun Disord.2025;60:e70015
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DOI
PMID
Publisher
Wiley