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Child and family health-related quality of life and participation outcomes and goals after acquired brain injury: A cross-sectional survey
Keetley, Rachel Manning, Joseph C Williams, Jane
Keetley, Rachel
Manning, Joseph C
Williams, Jane
Abstract
Objective: To explore longer-term health-related quality of life (HRQoL) and participation outcomes and goals of children and young people (CYP) with acquired brain injuries (ABI) and their families in a region of the UK and the impact of the COVID-19 pandemic. Method(s): Cross-sectional survey of (5-18 CYP) and their parent-carers 12-43 months following ABI. Included measures of HRQoL, participation, family function and parental wellbeing and demographic and free text questions. Result(s): Ninety-five responses (30% response) were received. 67% of CYP were at risk of impaired HRQoL, 72% had severely impaired participation. 53% of parent-carers reported reduced HRQoL and family functioning, 37% of parent-carers screened positive for anxiety/depression. Relationships exist between CYP participation and HRQoL and parental HRQoL and family functioning. Goals were overwhelmingly activity and participation focused. Participants described the global impact of an ABI on the CYP and family as well as the additional impact of the COVID-19 pandemic on CYP and family wellbeing. Conclusion(s): ABI significantly impacts CYP participation and both CYP and parent-carer wellbeing in the long-term, potentially further impacted by the COVID-19 pandemic. Rehabilitation interventions should address both participation and the psychological wellbeing of CYP with ABI and their parent-carers. Copyright © 2024 The Author(s). Published with license by Taylor & Francis Group, LLC.
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Date
2024
Type
Article
Subject
Brain injuries, Child, COVID-19 pandemic, Quality of life, Family
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Citation
Keetley R., Manning J.C., Williams J., Stewart I. and Radford K. (2024) 'Child and family health-related quality of life and participation outcomes and goals after acquired brain injury: A cross-sectional survey', Brain Injury, 38(3), pp. 217–226. doi: 10.1080/02699052.2024.2309244 https://doi.org/10.1080/02699052.2024.2309244.